Looking for advice for Kratom with MS Nerve Pain
@cherit Thank you! I will try the Yellow Thai. The only yellow I've tried is the Yellow Sumatra? I only recently heard of it for the first time but it wasn't very helpful. However, the Thai in general seems to be the best for different kinds of pain so I will absolutely try that. I really appreciate the response.
The reason I got interested in kratom is the really bad nerve damage I have. Its not from MS but from a tropical parasite called rat lungworm in Hawaii. Its been 3 years since I got it and the nerve damage has not improved. My feet and arms are numb and the lower half of my body is extremely painful (unless I am taking kratom). The pain level is about a 7. Kratom really saved my life and made me functional again. I would have hung myself by now without it. Opiates don't help.....at least oxycodone and dilaudid.. Dilaudid (4mg) is the strongest one I have tried but it does not hold a candle to kratom. it also makes me sleepy and dopey which I don't like. I have tried many strains from many vendors and found that green ketapang works far better than any other I have tried. I would say where I get it but the forum rules restrict that. Green Bentuangie is the second best that I have found so far. I take kratom about every 4 hours and it lowers my pain down to 1 or 2. It works far better than any reds I have tried.
@peter-aldo Thank you for your response. I have never heard of either strain but I will see if the store I get it from here in Ohio has either one. Like I said, I will try any suggestion until I find something that works. When I first starting taking Kratom for my Crohn's, I was bedridden. I got up only to run to the bathroom. I was twenty six and I was told that I was most likely going to die and the doctors at the hospitals did not care because I was uninsured. I took pain pills when I got them to stop the bathroom trips and to ease the pain a little so I could eat but that was not the life I ever wanted. I was ready to die. But I'm a fighter to the core and I felt like if I looked, I could find something that would help. At first it gave me back my life. But as the MS crap continues getting worse I feel like I did just before I found Kratom in the first place. I cannot live another year like this year. I need change or...I don't know what I am going to do. What I absolutely do know is that this is not working for me. I am not asking to be cured or to have all of my symptoms disappear. I do feel like, at this point, that's asking too much. I just want to be able to find some joy in my life and right now, it's just not there. At first when my daughter was born everything was amazing. I never thought I would carry a child to term and I was a little proud of my crappy body for doing one thing right. lol But now I feel like, even though I am with my daughter every day doing everything with her and for her, I am really missing her life because, with the pain, every day is something to just get through. I look forward to nothing. And this is not a life. So I do sincerely appreciate all of the suggestions. One of these things might just save my life. Thank you. :)
I hope everybody gets some help from Kratom as I have! After 17 years of No pain relief from opioids, I found Kratom to be very helpful! Keep up the fight!
@cherit You can pick my brain, but the best person to explain all this is Dr. Wallach. His recorded lecture of "Dead Doctors Don't Lie" is the top-sellng health lecture of all time. We can't pick and choose a few vitamins and minerals -- there are 90 essential vitamins, minerals, trace minerals, amino acids, and essential fatty acids that our body needs so it can pick what it needs every day to do its complex functions.
@paulkemp I have not heard of Naturopathic medicine being added to Medicare. It is opposed by the AMA and only 17 states license Naturopaths, BUT Dr. Wallach's formulas are available in all 50 states and 12 other countries. I just take what he recommends, based on his wide knowledge and experience, and in 6+ years I haven't been sick once and may back pain/sciatica was repaired. I can help you get Wallach's products and it is much less expensive to get all of them than it is to visit GNC or Amazon each month to try to guess what your body needs.
@keair-snyder-gillian Are you rotating Red vein strains from different vendors and farmers? I've found a need to rotate strains to keep our tolerance low. I keep many small samples around, so I can use a different type each time I dose. This keeps my body sensitive to the slightly different alkaloid mix that each strain contains. You are bound to lose effectiveness relying on just one strain for months or years.
I'll start with the following: I am under the supervision of a very respected (and practical) Spinal care facility in my area. And I have told them about ALL of the supplements that I am taking - including the Kratom. I feel it is very important for my doctor to know everything that I am taking, so we can come up with a complete care plan together. Also, I don't have MS, so I don't know how useful this will be to you. But I do suffer from intense nerve pain and numbness caused by a herniated disc in my c6-7 region. I also have back and hip problems and I have been taking Kratom daily for ten years to help alleviate the pain caused by these issues. Like many on this thread, I have tried gabapentin, steroids and prescription pain meds with varying degrees of success. For me, gabapentin (as prescribed by my doctor) actually worked best to alleviate my neuropathic pain. However, it also made me feel like a zombie and made it difficult for me to work, enjoy sports and take care of my family. So, I consulted with my doctor, and we made the decision together to wean me off of the drug and try some alternative therapies that include kratom, nsaids, supplements and physical therapy. Regarding kratom, I don't know if I am allowed to talk dosages in the forum, so I'll just state that I take the common size capsules that I either purchase online or fill myself at home. Here is the regimen that has helped me the most: In the morning: I take a combination of Premium Bali (red), and Vietnam or Premium Mang Da (both are Greens). I take more of the Premium Bali as that is most efficacious for the pain. I also take this along with an NSAID - which helps reduce inflammation on the c6-7 area where my nerve pain is initiated. I find that this combination of Red and Green Kratom, and NSAID helps me overcome the pain and gives me the energy I need to get through the day. Noon time: More NSAID or Acetaminophen In the evening (around 7pm or so): I take a combination of Premium Bali, and Red Vein Thai - both reds with good pain alleviation properties. I take another dose of NSAID around 10pm and get out an ice pack and crash in my recliner with the ice pack between the chair and my upper back/neck region. I usually fall asleep like this and wake up a couple hours later and cart myself off to bed where I sleep the rest of the night. I also take the following supplements which now have some studies suggesting that they are effective for improving neuropathic pain: Alpha Lipoic Acid and Acetyl L Carnitine. And I take Fish Oil and Glucosamine since those are supposed to help with inflammation as well. Again, I have discussed all these supplements with my attending doctors and I have received their blessing to continue using them so long as I remain under their care and check in from time to time. I also make sure that I get my annual checkup with my GP and get all recommended blood work and other recommended procedures. With exception of the c6-7 herniated disk, I am a healthy 50 year old man - no blood pressure issues, and no blood sugar issues. Both of my siblings have been living with MS for the last 15 years now. So I at least know something of what you are going through. I hope this information helps you!
I have MS and Yellow Sunda has been a life changer for me. I couldn't walk due to the nerve pain in my legs and now am able to play laser tag with my grandsons. I LOVE this plant ❣❣
I’m sorry about everything you deal with. It’s a very difficult scenario. I also have MS and chronic pain. I just relapsed and the pain issues have magnified considerably. I recently just this past week started taking turmeric powder as I read it can augment the effects of Kratom. It’s really helping pain, nerve and muscle pains. I don’t have the burning skin pain right now but have in the past. I just using straight turmeric powder since I have some organic of this in my pantry already. I’m taking a half teaspoon every time I dose the Kratom. I’m really feeling it calm the inflammation down, and it’s helping me relax and I hope to get some help with sleep because it’s usually inflammation and pain that keeps me from sleeping especially in my brain and head, face, ears and sinuses. I read that it helps to use black pepper with it, but also I read ginger and cinnamon help too. I’m making also a pot of this daily in the coffee maker, dumping in large amounts of turmeric, some black pepper, ginger and cinnamon. I rotate the red strains I am using and definitely I have had to increase my dosage right now to get relief. During the daytime I mix various green strains with the reds. I hope you can get help for your situation and someone to help with the caregiving responsibilities. I also think the turmeric is helping my gut. Best wishes.
Have you considered a red strain enhanced with CBD? CBD Isolate Enhanced Red Bali is popular with foiks that have similar stories to yours and is getting more popular with many vendors (not medical advice nor am I claiming it will treat or cure any of your conditions). I can send you a free sample if you private message your shipping address to see if it's something you enjoy :)